1

Howat, Dr Paul

2

Binns, Professor Colin and Lee, Professor Andy  (WA)

3

Australian Institute of Health and Welfare  (ACT)

4

Gynaecological Cancer Service, Peter MacCallum Cancer Centre  (VIC)

5

Fortescue, Mrs Lisle  (NSW)

6

Psychosocial Support Project  (NSW)

Supplementary information

Provided at hearing 1.8.06:

• NSW Health,  Directory of gynaecological oncology treatment and support services, 2004

• Promotional brochure for www.gynaecancersupport.org.au

• Westmead Centre for Gynaecological Cancer, Comprehensive Team Care of Gynaecological Oncology Patients

• R McQuellon, G Hurt, P DeChatelet, 'Psychosocial Care of the Patient with Cancer', Cancer Practice, Nov/Dec 1996, Vol 4, No 6

• S Heiney et al, 'Planning and Organising a Multidisciplinary Psychosocial Oncology Service', Cancer Practice, Nov/Dec 1995, Vol 3, No 6

• J Owen et al, 'Psychosocial Interventions for Cancer: Review and Analysis using a three-tiered Outcomes Model', Psycho-Oncology10, 2001

• M Fitch, Supportive Care for Cancer Patients, Hospital Quarterley

• P Harnett, et al,  Certain Death in Uncertain Time: A Qualitative Study of the Experience of Advanced Ovarian Cancer, Overview of research project

• J Ussher et al, An evaluation of concerns, self-perceived needs, and supportive interventions, for informal cancer carers, Overview of research project

• P Butow et al, Medical Psychology Research Unit, Supporting the supporters: A randomized controlled trial of interventions to support leaders of cancer support groups

• The Cancer Council (NSW) Support Groups Empower Cancer Patients: New Study, Media release, 4 April 2004

• Clinical Oncological Society of Australia, Psycho-Oncology Cooperative Research Group

Provided following hearing 1.8.06:

• Additional information received 3.8.06 (satellie symposium)

• Response to questions regarding workforce issues following hearing 1.8.06, dated 29.8.06

7

Gynaecological Cancer Society  (QLD)

8

Nikolovski, Ms Concetta

9

Rosengarten, Ms Alexa  (VIC)

Supplementary information

Provided at hearing 3.8.06

• A Rosengarten, 'Sex and sex-ability: Sex, illness and disability' from Sexual Health: an Australian perspective, M Temple-Smith & s Gifford (eds)

• Dr R King, 'Pursuer/distancer – A vicious cycle in action' from Good Loving Great Sex, Arrow, 1997

• Possible sexuality issues involved with gynaecological cancer surgery

• Opening remarks – references

• G Tan, K Waldman, R Bostick, 'Psychosocial Issues, Sexuality and Cancer', Sexuality and Disability, Vol 20, No 4, Winter 2002

• B Schantz Laursen, K Overvad, A schou Olesen, C Delmar, L Arendt-Nielsen, 'Ongoing Pain, Sexual Desire, and Frequency of Sexual Intercourses in Females with Different Chronic Pain Syndromes', Sexuality and Disability, Vol 24, No 1, Spring 2006

• K Booth, K Deaver, H Kitchener, J O'Neill, C Farrell, 'Women's experiences of information, psychological distress and worry after treatment with gynaecological cancer', Patient Education and Counseling, 56 (2005)

• R Petersen, K Ung, C Hollnad, J Quinlivan, 'the impact of molar pregnancy on psychological symptomatology, sexual function, and quality of life', Gynecologic Oncology, 97, 2005

• C Warnock, 'Patients' experiences of intracavity brachytherapy treatment for gynaecological cancer', European Journal of Oncology Nursing, 9, 2005

10

Sydney Gynaecological Oncology Group, Sydney South West Area Health Service NSW  (NSW)

Supplementary information

• Additional information provided following hearing 2.8.06, received 3.8.06

11

Queensland Centre for Gynaecological Cancer (QCGC)  (QLD)

12

Bancroft, Ms Ann  (WA)

13

Monash Medical Centre - Gynaecological Oncology Unit  (VIC)

14

Gynaecological Awareness Information Network Inc (GAIN)

15

Women's Health Queensland Wide Inc  (QLD)

16

Country Women's Association of NSW  (NSW)

17

The Lymphoedema Association of WA  (WA)

Supplementary information

Provided at hearing 4.8.06

• Opening Statement by Mrs B White

• Commonwealth and other funding required for treatment costs

• A Bancroft – My wish list

18

Cancer Voices Australia  (NSW)

Supplementary information

Provided at hearing 2.8.06:

• Cancer Voices NSW, Charter of cancer consumer values, pamphlet

• Cancer Voices NSW, Position Statement on Complementary and Alternate Therapies in the Treatment of Cancer

• Cancer Voices Australia, Presentation to the Senate Inquiry into Gynaecological Cancer in Australia

Provided following hearing:

• Additional information concerning psychosocial guidelines, Isolated Patients' Travel and Accommodation Assistance Schemes, role of cancer consumer groups, dated 3.8.06

19

Cancer Voices Victoria  (VIC)

Supplementary information

• Supplementary submission provided at hearing 3.8.06

20

Cancer Nurses Society of Australia  (NSW)

Supplementary information

Provided at hearing 1.8.06:

• M Ryan et al, 'Aetiology and prevalence of lower limb lymphoedema following treatment for gynaecological cancer',  Australian and New Zealand Journal of Obstetrics and Gynaecology, 43, 2003

• M Ryan et al, 'The experience of lower limb lymphedema for women after treatment for gynaecologic cancer', Oncology Nurses Forum, May-Jun;30 (3)

21

CSL Limited  (VIC)

Supplementary information

• Cervical Screening Essentials

• Guidelines (with Senator Moore)

• Cervical Screening Seminar, NSW Cervical Screening Program

• Gardasil, Product Information

22

Llewellyn, Dr Huw  (ACT)

23

Northern Sydney Central Coast Health (NSCCH) Gynaecological Oncology Group  (NSW)

24

Australian Society of Gynaecologic Oncologists (ASGO)  (NSW)

25

Hunter New England Centre for Gynaecological Cancer  (NSW)

26

Blomfield, Dr Penny  (TAS)

27

Heffernan, Ms Margaret  (VIC)

Supplementary information

Provided at hearing 3.8.06

• 'Celebrating 15 years of bug breakfast', NSW Public Health Bulletin, Vol 16, no 5-6

• 'My Journey with Gynaecological Cancer' Information Kit: Budget: 1 year estimate

28

Hammond, Professor Ian

Leung, Dr Yee Chit

McCartney, Dr Anthony  (WA)

29

Garvan Institute of Medical Research, Cancer Research Program  (NSW)

30

GO Fund  (NSW)

31

Name withheld  (SA)

Supplementary information

• Additional information received 8.8.06 (availability of herceptin)

32

Rome, Dr Robert  (VIC)

33

National Ovarian Cancer Network  (VIC)

Supplementary information

• Growing Awareness of Ovarian Cancer pamphlet and postcard

• Ovarian Cancer – the journey CD

• Ovarian Cancer – the journey Treatment

34

Smith, Ms Tanya  (WA)

35

Greater Metropolitan Clinical Taskforce (GMCT) Gynaecological Oncology Network  (NSW)

Supplementary information

Provided at hearing 1.8.06

• Gynaecological oncology services for greater metropolitan Sydney - pamphlet

• Gynaecological Oncology Services CD

• Ms Mercia Bush, community representation on medical committees

Provided following hearing

• Additional information provided following hearing, received 6.9.06 (WHO publication on HPV vaccines)

36

Lickiss, Professor J Norelle  (NSW)

Supplementary information

• Notes for presentation at the hearing 2.8.06

• Additional comments following hearing, received 14.8.06

37

Royal Women's Hospital  (VIC)

Supplementary information

Provided at hearing 3.8.06

• Professor Quinn Opening remarks

• BreaCanResource Centre – pamphlet &       BreaCan – An Innovative Model of Support

• The Sexual and Reproductive Health of Young Victorians, A collaborative project between Family Planning Victoria, Royal Women's Hospital and Centre for Adolescent Health

Provided following hearing

• Additional information provided following the roundtable discussion 3.8.06 relating to models of care for women living in regional areas, received 29.8.06

38

OvCa (ACT & Region)  (ACT)

39

Gynaecological Oncology Committee of the Royal Australian & New Zealand College of Obstreticians and Gynaecologists and Gynaecological Oncology Department, Mercy Hospital for Women, Heidelberg  (VIC)

40

Hacker, Professor Neville  (NSW)

Supplementary information

Provided at hearing 1.8.06:

• Beth Y. Karlan, M.D., 'Evolution through intelligent design', Presidential Address International Gynaecologic Cancer Society, Gynecologic Oncology, 102, 2006

• Society of Gynaecologic Oncologists: Statement on a Cervical Cancer Vaccine, June 2006, Statement on Use of Intraperitoneal (IP) Chemotherapy for Ovarian Cancer, January 2006; Statement on the Improved Detection of Abnormal Glandular Lesions, September 2005; and Statement on Early Detection Markers for Ovarian Cancer, March 2005

• Neville F. Hacker, 'Organisation of gyrnecological cancer care; a time for change', Presidential Address International Gynaecologic Cancer Society', International Journal of Gynecological Cancer, 8, 1998

• G Ronco et al, 'Human papillomavirus testing and liquid-based cytology in primary screening of women younger than 35 years: results at recruitment for a randomised controlled trial', Lancet Oncology 2006:7

• M Inoue, J Sakaguchi, T Sasagawa, M Tango, 'The evaluation of human papillomavirus DNA testing in primary screening for cervical lesions in a large Japanese population', International Journal of Gynecological Cancer, 16, 2006

• M Schiffman, D Solomon, 'Findings to date from the SCUS-LSIL Triage Study (ALTS)', Archives of Pathology and Laboratory Medicine, Vol 127, No 8

• P Davis et al, 'A report on the current status of European research on the use of human papillomavirus testing for primary cervical cancer screening', International Journal of Gynecological Cancer, 118, 2006

Provided following hearing

• Additional information provided relating to collection of data, dated 16.8.06

41

Health Consumers' Council WA  (WA)

42

National Health and Medical Research Council  (ACT)

Supplementary information

• NHMRC funded cancer research 2000-2006 provided at hearing 23.6.06

• Response to questions following hearing dated 19.7.06

43

Federation of Ethnic Communities' Councils of Australia (FECCA)  (ACT)

44

National Breast Cancer Centre  (NSW)

Supplementary information

Provided at hearing 1.8.06

• NBCC, Assessment of symptoms that may be Ovarian Cancer: a guide for GPs

• NBCC, Information about CA125 and Ovarian Cancer

• NBCC, Ovarian Cancer in Australia

• NBCC, Clinical practice guidelines for the psychosocial care of adults with cancer

• NBCC, Advice about familial aspects of breast cancer and epithelial ovarian cancer

• NBCC, Epithelial Ovarian Cancer: Understanding your diagnosis and treatment

• CAN & NBCC,  Clinical practice guidelines for the management of women with epithelial ovarian cancer

• CAN & NBCC, Clinical practice guidelines for the psychosocial care of adults with cancer

Provided following hearing

• Supplementary submission received 5.10.06

45

GlaxoSmithKline (GSK)  (VIC)

46

Davy, A/Professor Margaret  (SA)

47

Australian Physiotherapy Association (APA)  (VIC)

Supplementary information

Provided at hearing 3.8.06

• Presentation

• A McAuliffe, A Cantlay, E Lassko, A Review of Physiotherapy Services to Palliative Care Patients in Australia, Vol 1, August 1997

48

Cancer Council Victoria  (VIC)

Supplementary information

• Additional information received 11.9.06 (supportive of NBCC's work on ovarian cancer program)

49

Queensland Multicultural Health Network  (QLD)

50

Diagnostic Technology Pty Ltd  (NSW)

Supplementary information

• J Cuzick et al, 'Overview of the European and North American studies on HPV testing in primary cervical cancer screening', International Journal of Cancer,  119, 2006 provided at hearing 1.8.06

• M Schiffman and P E Castle, 'The Promise of Global Cervical-Cancer Prevention', The New England Journal of Medicince, November 17, 2005, received 22.8.06

• HPV Today, Newsletter on Human Papillomavirus, No.9 August 2006, received 22.8.06

51

The Cancer Council WA  (WA)

Supplementary information

Provided at hearing 4.8.06

• M Grossi, M Quinn, V Thursfield, P Francis, R Rome, R Planner, G Giles, 'Ovarian cancer: patterns of care in Victoria during 1993-1995', Medical Journal of Australiai, 1 July 2002

• Letter from Cancer Voices WA to the Minister for Health and Ageing, dated 27 July 2006;

• Letter from Ms B Cook to the Minister for Health and Ageing, dated 26 July 2006

• Western Australian Clinical Oncology Group, Recommendations for Screening for Specific Cancers: Guidelines for General Practitioners

52

Department of Health and Ageing  (ACT)

Supplementary information

• Info on MBCC meeting to discuss multidisciplinary cancer item, assessment of ovarian cancer symptoms and Clinical practice guidelines for the psychosocial care of adults with cancer provided at hearing 23.6.06

53

Business and Professional Women of WA  (WA)

54

South Australian Government  (SA)

55

Australia New Zealand Gynaecological Oncology Group (ANZGOG)  (NSW)

56

The Cancer Council of Australia; The Clinical Oncological Society of Australia and National Aboriginal Community Controlled Health Organisation  (NSW)

57

The Royal College of Pathologists of Australasia  (NSW)

Supplementary information

Provided at hearing 1.8.06:

• RCPA response to the inquiry's terms of reference

• RCPA, Fact File: Pathology Workforce in Australia, July 2006

• RCPA, Position Statement: NHMRC guidelines for cervical cytology implementation and implications, July 2006

• Letter to Dr Martin Bernard Van der Weyden dated 10 April 2006 on Pap smears

• RCPA, 'Manpower Crisis on Pathology', PathWay, Spring 2005

• RCPA, PathWay, Jubilee Souvenir Issue, Autumn 2006

• RCPA, A career in Anatomical Pathology, pamphlet

• RCPA, A career in Pathology, pamphlet

58

Menzies School of Health Research  (NT)

59

Queensland Government  (QLD)

60

Department of Human Services' Victoria  (VIC)

61

Carless, Dr Alan  (NSW)

62

Baird, Dr Phillip

63

Northern Territory Government  (NT)

64

Name withheld

65

DES Action Australia-NSW

66

Martin, Mr John  (NSW)

67

Strutt, Dr Rebecca  (NSW)

68

Robertson, Ms Rosalind  (NSW)

69

Sevicke Jones, Ms Maggie  (WA)

70

Bowtell, Professor David on behalf of the Australian Ovarian Cancer Study (AOCS) (VIC)

71

Gibbons, Ms Victoria  (ACT)

72

Mid-Life & Menopause Support Group  (WA)